Sometimes I spin or knit with a specific project in mind. Sometimes it is just to pass the time. Recently I have been doing a lot of that while sitting in waiting rooms.
Several months ago I wrote that my mother-in-law was diagnosed with colorectal cancer. She went for radiation therapy in April, which, unfortunately didn’t work. The tumor grew, which was a complete shock; the doctors did not warn us that this could happen.
In May she had the operation to remove the tumor and because of the location, a permanent colostomy was also done. Five days later she was home, and considering the heart problems she had after surgery I believe this was too soon. (But who am I to argue with doctors, oh, and they also failed to show her how to change her colostomy bag).
The surgery she had was major. She had one incision up her stomach, the colostomy, and the incision were they removed her anus. And all of this needed post operative care. For this you either go to the nearest clinic or pay for a nurse to visit you in your house. We paid for a nurse, and my mother-in-law had weekly visits at the hospital with her surgeon to exam her progress. This was a slow and painful process, and an infection in the perineum incision meant she had to go back into hospital.
During this time we also received her biopsy result, not from the doctor but from the report. The cancer was in her lymph nodes, stage III. I understood this, but I am not sure my mother-in-law did, and our visit with her surgeon to discuss the results was rather vague, (…of course the doctor had a very bad cold and we had been waiting 6 hours to see her, so no one really wanted to talk about anything).
That was in July, and now she is feeling better. The incision still hasn’t healed, (it has to heal slowly from the inside out) and for the past two months we have been seeing the oncology doctor to start chemotherapy. This has been frustrating because the oncologist would like to begin treatment, but can’t until the incision has healed and other hospital procedures are completed, and everything inside the hospital takes time…even with URGENT written on it.
My part in this has been my mother-in-law’s advocate and nurse. I learned quickly, crash course style, how to change a colostomy bag, how to change a dressing, how to talk to doctors, how to go from one department to another inside the hospital looking for results and answers, and how to have a lot of patience. Knitting helps with that.
So far our worst “waiting” day was arriving at 10am and being seen at 2pm, then being told we had to see her surgeon who was working in emergency. So off to emergency where we waited till 9pm to be seen. That was a long day. I learned that being nice helps getting the nurses on your side.
I also joined an on-line ocular melanoma group which has really helped me understand more about my nevus. It is a hard group to belong to, sad, and sometimes I feel like there is cancer every where I go. But I also think this has made it easier for me to help my mother-in-law.
I think her cancer has been very hard for her and her family because no one has seen the effects of her caner. Her cancer never made her sick…the operation made her sick and in pain, but not the cancer. Everyone is scared of cancer, but without physical symptoms this cancer is hard to blame.
I know this is supposed to be a fibre blog, and I am sorry for going off track, but helping my mother-in-law is a large part of my life at the moment. Luckily, I have my mom visiting and she has helped support me through all of this. She has been here since June, and it is very nice having her here for this long stay.
And just because this is a fibre blog, here is some waiting room knitting, and soon exciting news from Créatif!